CADASIL advocacy at the 2019 Alzheimer’s Disease-Related Dementias Summit
https://meetings.ninds.nih.gov/Home/Agenda/21149 The Alzheimer’s Disease-Related Dementias (ADRD) Summit 2019 was organized by the NINDS [...]
CADASIL Patient Educates Physical Therapy Students
In November of 2018 Laura Lurshen gave an hour long presentation on CADASIL at Herkimer [...]
Million Dollar Bike Ride – Team CADASIL participating in 2019
The 6th Annual Million Dollar Bike Ride takes place on June 8, 2019. This year [...]
CADASIL Family Registry poster presented at 2018 NORD Summit
cureCADASIL, in collaboration with researchers at RTI Health Solutions (RTI-HS) and with Invitae, presented results [...]
CADASIL research at UCLA
Milagros Romay, Ph.D., Margaret Ramirez, Luisa Iruela-Arispe, M.Sc., Ph.D. During the Summer of 2018 cureCADASIL [...]
A unique ICD-10 code for CADASIL: I67.850
The cureCADASIL Association announces that the National Center for Health Statistics has designated a specific [...]
CADASIL research presented at American Society for Neural Therapy and Repair event
The cureCADASIL Association has furthered support of CADASIL research by sponsoring a student travel [...]
Cayla’s Story
IOWA FUNDRAISER SET FOR FAMILY WITH 3 CADASIL PATIENTS The fact that CADASIL is passed [...]
cureCADASIL Welcomes Two New Scientific Advisory Board Members
For additional details please view our press release. May 2018
CADASIL featured in Rare Neurological Disease 2018 Special Report
Dr. Karen Orjuela, worked together with cureCADASIL and Neurology Reviews to increase awareness of CADASIL [...]
2018 Global Genes RARE Patient Impact Grant to benefit CADASIL
cureCADASIL was awarded a 2018 Global Genes RARE Patient Impact Grant to support expansion of the [...]
CADASIL Connection December 2017 Webinar Recording
The following link will take you to the recorded December 2017 CADASIL Connection webinar. You [...]
cureCADASIL Auction Fundraiser Starts September 1, 2017
The cureCADASIL Association online auction will be held September 1-7, 2017. Bidding on items will help [...]
CADASIL Connection August 2017 Webinar Recording Available
The following link will take you to the recorded August 2017 CADASIL Connection webinar. You [...]
CADASIL Research Highlighted by Rare Disease Report
Rare Disease Report shared the news of the latest published CADASIL research from the lab [...]
CADASIL Connection Webinar Speaker Series Announcement
Exciting progress is being made in understanding mechanisms of CADASIL mutations in disease expression, leading [...]
Rare on the Road 2017 Attended by cureCADASIL Trustee
Nancy Maurer, cureCADASIL President and Trustee, attended RARE on the Road in Kansas City on June 5, [...]
2017 Rare Disease Week in DC with RDLA
Feb.27 – March 2, 2017 Over 600 Rare Disease patients, caregivers, researchers and advocates met [...]
NC Rare Disease Coalition includes cureCADASIL Associate Trustee
cureCADASIL Associate Trustee Sandra Talbird joined the newly formed NC Rare Disease Coalition last Fall. [...]
Ragazzo Family Fundraiser
In May 2016, Tony and Janice Ragazzo helped organize a fundraiser at ESM Ferolie [...]
