Mark’s Journey
I am writing this for my late husband. Mark's journey [...]
I am writing this for my late husband. Mark's journey [...]
The 2021 Million Dollar Bike Ride (MDBR) held by the [...]
The 2021 MDBR remained virtual due to COVID-19 concerns, but [...]
I was 13 years old when I had my first [...]
The NIH has released a one month survey in order [...]
2020 was unlike anything we have experienced in the past. [...]
A brief chat with Jane Gunther. Patient advocate associate for [...]
This patient story is adapted from the foreword of our [...]
On June 8, 2019 a team of rare disease warriors [...]
There is an ongoing research study at University of California [...]