Mark’s Journey
I am writing this for my late husband. Mark's journey [...]
CADASIL Pilot Research Grants Awarded for Over $120,000!
The 2021 Million Dollar Bike Ride (MDBR) held by the [...]
2021 Million Dollar Bike Ride a Success for CADASIL Research
The 2021 MDBR remained virtual due to COVID-19 concerns, but [...]
Desleyann – The Fight!
I was 13 years old when I had my first [...]
CADASIL Participating in Rare Disease COVID-19 NIH Study
The NIH has released a one month survey in order [...]
2020 Million Dollar Bike Ride a Success for CADASIL Research
2020 was unlike anything we have experienced in the past. [...]
Rare Genomics features CADASIL
A brief chat with Jane Gunther. Patient advocate associate for [...]
David and Eloise – CADASIL Journey Expressed Through Poetry
This patient story is adapted from the foreword of our [...]
2019 Million Dollar Bike Ride a Success for CADASIL Research
On June 8, 2019 a team of rare disease warriors [...]
A Patient’s Experience Participating in CADASIL Research
There is an ongoing research study at University of California [...]