Thanks to you – the CADASIL community members who volunteer, donate, advocate and help fulfill our cureCADASIL mission – we are an active, involved team making a difference for the lives of those with CADASIL.
Every day, we focus on helping families living with CADASIL by developing resources, increasing awareness, and driving research to accelerate the discovery of CADASIL therapies. You make this work possible!
cureCADASIL Annual Reports
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2015 Annual Report
2016 Annual Report
We are proud to be members of the NORD community. NORD is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them.
We support and participate in and support many of the EveryLife Foundation’s programs. This foundation is dedicated to accelerating biotech innovation for rare disease treatments through science-driven public policy.
We are very proud to be a member of the Global Genes Rare Foundation Alliance. This is a coalition of over 300 rare disease organizations that understand that together we are more powerful.
The cureCADASIL Family Registry is securely maintained by AltaVoice (formerly Patient Crossroads), leader in rare disease patient registries. Please join if you have not already!
We are a proud Partner of ThinkGenetic as they provide rare disease information and resources to patients using IBM Watson technology.
cureCADASIL is a new nonprofit member of the ABC which is comprised of the United States’ leading professional neurological, psychological, and psychiatric associations and patient organizations. Together, we seek to advance the understanding of the functions of the brain, and to reduce the burden of brain disorders through public advocacy.
We are proud to participate in Great Nonprofits and hope you will take the time to leave a comment about your experience with cureCADASIL.