Show your support for CADASIL
Raise awareness with a CADASIL Facebook Frame!
Visit Twibbon and get your very own social media picture frame to support awareness of CADASIL. There are also temporary Facebook covers, tweet you can share, and more!
Become a cureCADASIL volunteer
If you have skill set and time to volunteer for cureCADASIL please email us: info@curecadasil.org!
We are looking for individuals for the following roles:
Public Awareness committee – Share a CADASIL public service announcement on public TV and radio stations in your area. Or on social media or at your local hospital! We have detailed tips on how to achieve success in having our CADASIL PSA aired. A great way to spread public awareness!
Get involved in political advocacy
Reach out to your government leaders and ask them to support rare disease as they govern. Specifically you can mention CADASIL, but many of the initiatives they vote on focus on all rare diseases. Sending emails and letters is great, but a quick telephone call can be just as helpful. Often a legislative aide answers the phone and you give your name and state you want your representative to support rare diseases. IF there is a particular bill affecting rare disease, our organization will try to make you aware via our social media!
Use the links below to find and contact a US senator or representative and ask them to vote for legislation that helps rare disease research and funding:
Find my Congress representative
Tweet for CADASIL
What do the symbols mean?
• # means that you are adding that term to the search feature so everyone can pull up that phrase and see what has been posted.
• @ means you are directing it to someone’s twitter wall
A great way to share is on social media, you could even add in your favorite celebrities to these posts! Use the @ symbol to reach out to friends on twitter, etc. It’s fun! (Once you have a twitter account, you can search for people and find out what their account name is.)
We are @CADASIL_Assn. You can also just go to our page at https://twitter.com/CADASIL_Assn and retweet (share) from there!
#CADASIL is the leading genetic cause of strokes – often beginning in young adults
Believe in the power of believing in yourself! #cureCADASIL
November is CADASIL Awareness Month – share and let the world know we want a cure! #cureCADASIL #RareDisease
30 million people in the United States are living with rare diseases. We need support for #RareDisease starting with #cureCADASIL