Information about being politically active as an advocate for CADASIL and rare disease
CADASIL Patient Educates Physical Therapy Students
In November of 2018 Laura Lurshen gave an hour long [...]
2018 Global Genes RARE Patient Impact Grant to benefit CADASIL
cureCADASIL was awarded a 2018 Global Genes RARE Patient Impact Grant [...]
Rare on the Road 2017 Attended by cureCADASIL Trustee
Nancy Maurer, cureCADASIL President and Trustee, attended RARE on the [...]
2017 Rare Disease Week in DC with RDLA
Feb.27 - March 2, 2017 Over 600 Rare Disease patients, [...]
NC Rare Disease Coalition includes cureCADASIL Associate Trustee
cureCADASIL Associate Trustee Sandra Talbird joined the newly formed NC [...]
cureCADASIL Advocated for CADASIL Patients at 2016 Rare Disease Week on Capitol Hill
cureCADASIL Trustee and tireless volunteer Janice Ragazzo attended Rare Disease [...]
How can I support cureCADASIL Association’s Mission?
Looking for ideas on how to help raise money for [...]
2013 Rare Disease Day CADASIL Association
2013 Rare Disease Day summaries from CADASIL Association leadership From [...]