Information about being politically active as an advocate for CADASIL and rare disease
David and Eloise – CADASIL Journey Expressed Through Poetry
This patient story is adapted from the foreword of our [...]
cureCADASIL Hosted the US Roundtable of CADASIL clinical researchers
May 6, 2019 Philadelphia, PA cureCADASIL hosted the [...]
cureCADASIL Invited to NeuroNEXT Foundation Outreach Meeting
May 4, 2019 Philadelphia, PA cureCADASIL was one [...]
CADASIL advocacy at the 2019 Alzheimer’s Disease-Related Dementias Summit
https://meetings.ninds.nih.gov/Home/Agenda/21149 The Alzheimer’s Disease-Related Dementias (ADRD) Summit 2019 was [...]
CADASIL Patient Educates Physical Therapy Students
In November of 2018 Laura Lurshen gave an hour long [...]
2018 Global Genes RARE Patient Impact Grant to benefit CADASIL
cureCADASIL was awarded a 2018 Global Genes RARE Patient Impact Grant [...]
Rare on the Road 2017 Attended by cureCADASIL Trustee
Nancy Maurer, cureCADASIL President and Trustee, attended RARE on the [...]
2017 Rare Disease Week in DC with RDLA
Feb.27 - March 2, 2017 Over 600 Rare Disease patients, [...]
NC Rare Disease Coalition includes cureCADASIL Associate Trustee
cureCADASIL Associate Trustee Sandra Talbird joined the newly formed NC [...]
cureCADASIL Advocated for CADASIL Patients at 2016 Rare Disease Week on Capitol Hill
cureCADASIL Trustee and tireless volunteer Janice Ragazzo attended Rare Disease [...]