Information about being politically active as an advocate for CADASIL and rare disease
Upcoming CADASIL Connection Webinars
Watch for two webinars in May and September to be [...]
Million Dollar Bike Ride Grants Announced
Thanks to all of the support from the CADASIL community [...]
Just Released—A Book on Atypical Dementias Featuring CADASIL
Jamie Talen, an acclaimed science writer who has focused on [...]
Sarah – A CADASIL Consortium Participant
In September, Sarah joined the cureCADASIL volunteer team and also [...]
Michael Kennedy – A Research Fundraising Champion
In June 2015, Michael suffered a stroke. He had no [...]
David and Eloise – CADASIL Journey Expressed Through Poetry
This patient story is adapted from the foreword of our [...]
cureCADASIL Hosted the US Roundtable of CADASIL clinical researchers
May 6, 2019 Philadelphia, PA cureCADASIL hosted the [...]
cureCADASIL Invited to NeuroNEXT Foundation Outreach Meeting
May 4, 2019 Philadelphia, PA cureCADASIL was one [...]
CADASIL advocacy at the 2019 Alzheimer’s Disease-Related Dementias Summit
https://meetings.ninds.nih.gov/Home/Agenda/21149 The Alzheimer’s Disease-Related Dementias (ADRD) Summit 2019 was [...]
CADASIL Patient Educates Physical Therapy Students
In November of 2018 Laura Lurshen gave an hour long [...]