Information about being politically active as an advocate for CADASIL and rare disease
David and Eloise – CADASIL Journey Expressed Through Poetry
This patient story is adapted from the foreword of our [...]
This patient story is adapted from the foreword of our [...]
May 6, 2019 Philadelphia, PA cureCADASIL hosted the [...]
May 4, 2019 Philadelphia, PA cureCADASIL was one [...]
https://meetings.ninds.nih.gov/Home/Agenda/21149 The Alzheimer’s Disease-Related Dementias (ADRD) Summit 2019 was [...]
In November of 2018 Laura Lurshen gave an hour long [...]
cureCADASIL was awarded a 2018 Global Genes RARE Patient Impact Grant [...]
Nancy Maurer, cureCADASIL President and Trustee, attended RARE on the [...]
Feb.27 - March 2, 2017 Over 600 Rare Disease patients, [...]
cureCADASIL Associate Trustee Sandra Talbird joined the newly formed NC [...]
cureCADASIL Trustee and tireless volunteer Janice Ragazzo attended Rare Disease [...]