cureCADASIL is a non-profit organization dedicated to CADASIL patients and their families. We incorporated originally as CADASIL Association as a non-profit organization in New Jersey in April 2012, and we received approval as an IRS 501(c)(3) organization in September 2012. We revised the organization name with the state of NJ to cureCADASIL in 2014.
cureCADASIL is run by a Board of Trustees made up of volunteers including CADASIL patients, family members of CADASIL patients, and others touched by this genetic disease. Trustees bring a variety of knowledge and experiences to the association. We welcome all interested parties as members and volunteers.
The mission of cureCADASIL is to raise awareness of CADASIL, ensuring it will be universally recognized and understood by the medical community, enabling patients to be correctly diagnosed. We are dedicated to helping patients, families, caregivers, and other supporters touched by CADASIL. We aim to unite patients and the medical community toward the common goal of treatments and, ultimately a cure for this rare genetic disease, by promoting Communication, Advocacy, Research, and Education.
cureCADASIL will coordinate, cultivate, accelerate, and fund research that aims to produce a cure for CADASIL and leads to development of treatments that will make the lives of people living with CADASIL richer and free of pain and discomfort.
click here for our Board of Trustees