Originally founded in 2012 as the CADASIL Association and rebranded in 2014 as cureCADASIL, our not-for-profit organization represents a community united in a commitment to curing CADASIL and improving the quality of life for those affected by this genetic disease.

By bringing together patients and medical professionals, we strive to:

  • Spread awareness of CADASIL within the wider medical community
  • Ensure accurate testing and diagnosis for CADASIL patients
  • Provide support for patients, families, caregivers, and advocates
  • Accelerate research efforts aimed at treating and curing CADASIL through coordination and fundraising

Our Board of Trustees is composed of dedicated volunteers including patients, family members, and others impacted by CADASIL, who all bring a wealth of diverse knowledge and experiences to our cause. We welcome everyone with open arms to join us as volunteers.

Research is at the heart of everything we do. Learn more about the important work we’ve been supporting.