A non-profit 501 (c)(3) organization dedicated to CADASIL research, patients and their families.
We are in this together!
We aim to unite patients and the medical community toward the common goal of treatments and ultimately a cure for this rare genetic disease, by promoting Communication, Advocacy, Research, and Education.
cureCADASIL
The mission of the cureCADASIL is to raise awareness of CADASIL, ensuring it will be universally recognized and understood by the medical community, enabling patients to be correctly diagnosed. We are dedicated to helping all touched by CADASIL, improving education available on CADASIL and promote and support research for this rare disease.
Cerebral autosomal dominant arteriopathy with subcortical infarcts and leukoencephalopathy, usually called CADASIL, is a dominantly inherited condition that causes stroke and other impairments at a young age.
A genetic blood test is considered the gold standard for diagnosing CADASIL. Testing indicated when clinical findings (migraines with early-onset strokes and dementia), MRI findings, and family history raise a high index of suspicion.
Finding the right healthcare provider can be a challenge when you have a rare disease like CADASIL. Since 2012 we have been reaching out, educating doctors about CADASIL. This year we are putting CADASIL information into the hands of providers to support the families they serve.
TAKE ACTION NOW!
Are you ready to get involved? Here are ways that you can take action to support the CADASIL Association in its mission to support those affected by CADASIL and the scientific community as it works toward a cure for this disease.
Share Your Story
Share your CADASIL journey with us.
Raise Awareness
Take the initiative! Spend time in your community spreading awareness and understanding of CADASIL. The more people in your community know about CADASIL, the more likely they are to help. And every person that steps forward is another voice to support us as we work to find a cure.
Join the Registry
Stand up and be counted! By joining the CADASIL Family Registry you are making a difference and allowing the medical community to gain a better understanding of how CADASIL affects patients and families. Registries build research ready communities, and we are ready!
Donate
We need your financial support! All members of cureCADASIL serve as volunteers to carry out our programs. Our organization faces many expenses to stay viable and work toward a cure for CADASIL. We advocate for CADASIL, educate the medical community and support leading research.
Testimonials
News and Events
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Rare Genomics features CADASIL
A brief chat with Jane Gunther. Patient advocate associate for Rare Genomics, Lauren Fang, met up with cureCADASIL Trustee and now President, Jane Gunther, at the 2019 Global Genes Summit. Read the interview and learn more... -
David and Eloise – CADASIL Journey Expressed Through Poetry
This patient story is adapted from the foreword of our new book of poems (Scud Clouds by David Keller and Eloise Bruce) about our journey since David was diagnosed with CADASIL. It is a chronicle in poetry... -
2019 Million Dollar Bike Ride a Success for CADASIL Research
On June 8, 2019 a team of rare disease warriors gathered as Team CADASIL to ride our first Million Dollar Bike Ride (MDBR)! It was an early morning as my co-chair Michael Kennedy, his wife... -
A Patient’s Experience Participating in CADASIL Research
There is an ongoing research study at University of California San Francisco (Mission Bay) for both clinically tested positive CADASIL patients AND undiagnosed family members, (siblings, parents, children, grandchildren, etc).We would like to share an...