Uniting patients, researchers, and clinicians to find a cure for CADASIL

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Share Your Story

We want to hear from you! Share your CADASIL journey and its impact on your daily life or that of your family member. From symptoms to diagnosis and doctor visits, take us on your path.  What advice can you offer to empower others as they navigate their own journeys?

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What is CADASIL?

CADASIL (Cerebral Autosomal Dominant Arteriopathy with Sub-cortical Infarcts and Leukoencephalopathy) is a rare, inherited form of cerebrovascular disease that occurs when the thickening of small blood vessel walls in the brain’s white matter blocks the flow of blood to the brain. It is the most common hereditary condition leading to small-vessel vascular cognitive impairment and dementia.

CADASIL Testing

A genetic blood test is considered the gold standard for diagnosing CADASIL. Testing indicated when clinical findings (migraines with early-onset strokes and dementia), MRI findings, and family history raise a high index of suspicion.

Doctor Directory

Finding the right healthcare provider can be a challenge when you have a rare disease like CADASIL. Since 2012, we have been reaching out, educating doctors about CADASIL. This year we are putting CADASIL information into the hands of providers to support the families they serve.

CADASIL Support

cureCADASIL hosts several local meet ups and encourages others to reach out to CADASIL families near you. This local networking can be a source of support for you as well as a springboard for local advocacy for CADASIL.

What is CADASIL?

CADASIL (Cerebral Autosomal Dominant Arteriopathy with Sub-cortical Infarcts and Leukoencephalopathy) is a rare, inherited form of cerebrovascular disease that occurs when the thickening of small blood vessel walls in the brain’s white matter blocks the flow of blood to the brain. It is the most common hereditary condition leading to small-vessel vascular cognitive impairment and dementia.

CADASIL Testing

A genetic blood test is considered the gold standard for diagnosing CADASIL. Testing indicated when clinical findings (migraines with early-onset strokes and dementia), MRI findings, and family history raise a high index of suspicion.

Doctor Directory

Finding the right healthcare provider can be a challenge when you have a rare disease like CADASIL. Since 2012, we have been reaching out, educating doctors about CADASIL. This year we are putting CADASIL information into the hands of providers to support the families they serve.

CADASIL Support

cureCADASIL hosts several local meet ups and encourages others to reach out to CADASIL families near you. This local networking can be a source of support for you as well as a springboard for local advocacy for CADASIL.

News, Events, and UpdatesNews, Events, and Updates

For the Patient

Thank you for sharing your CADASIL story, Sheila! 💙

April 12, 2024|

Sheila is a member of our Community Advisory Group, established in collaboration with Dr. FannyElahi for our ChanZuckerberg Initiative Patient-Partnered Collaboration. Read the article below. Read the Article

Look! cureCADASIL Has a New Look!

April 3, 2024|

After months of hard work by our board and volunteers, we are excited to announce a redesigned logo, website and overall branding presence for cureCADASIL. We want our brand to reflect the countless [...]

Million Dollar Bike Ride 2024

April 2, 2024|

It’s Time to Register for the Million Dollar Bike Ride 2024! Team CADASIL has been invited back to the Million Dollar Bike Ride (MDBR) for 2024 and registration is now open! In the [...]