Rare Genomics features CADASIL
A brief chat with Jane Gunther. Patient advocate associate for Rare Genomics, Lauren [...]
David and Eloise – CADASIL Journey Expressed Through Poetry
This patient story is adapted from the foreword of our new book of [...]
2019 Million Dollar Bike Ride a Success for CADASIL Research
On June 8, 2019 a team of rare disease warriors gathered as Team CADASIL [...]
A Patient’s Experience Participating in CADASIL Research
There is an ongoing research study at University of California San Francisco (Mission Bay) [...]
CADASIL at the 2019 Rare Disease Innovation and Partnering Summit
www.raredisease-summit.com cureCADASIL partnered with Geisinger Health System to present on the ClinGen Data [...]
cureCADASIL Hosted the US Roundtable of CADASIL clinical researchers
May 6, 2019 Philadelphia, PA cureCADASIL hosted the first US Roundtable of CADASIL [...]
cureCADASIL Invited to NeuroNEXT Foundation Outreach Meeting
May 4, 2019 Philadelphia, PA cureCADASIL was one of 15 non-profit organizations invited [...]
CADASIL advocacy at the 2019 Alzheimer’s Disease-Related Dementias Summit
https://meetings.ninds.nih.gov/Home/Agenda/21149 The Alzheimer’s Disease-Related Dementias (ADRD) Summit 2019 was organized by the NINDS [...]
CADASIL Patient Educates Physical Therapy Students
In November of 2018 Laura Lurshen gave an hour long presentation on CADASIL at Herkimer [...]
Million Dollar Bike Ride – Team CADASIL participating in 2019
The 6th Annual Million Dollar Bike Ride takes place on June 8, 2019. This year [...]
CADASIL Family Registry poster presented at 2018 NORD Summit
cureCADASIL, in collaboration with researchers at RTI Health Solutions (RTI-HS) and with Invitae, presented results [...]
CADASIL research at UCLA
Milagros Romay, Ph.D., Margaret Ramirez, Luisa Iruela-Arispe, M.Sc., Ph.D. During the Summer of 2018 cureCADASIL [...]
A unique ICD-10 code for CADASIL: I67.850
The cureCADASIL Association announces that the National Center for Health Statistics has designated a specific [...]
CADASIL research presented at American Society for Neural Therapy and Repair event
The cureCADASIL Association has furthered support of CADASIL research by sponsoring a student travel [...]
Cayla’s Story
IOWA FUNDRAISER SET FOR FAMILY WITH 3 CADASIL PATIENTS The fact that CADASIL is passed [...]
cureCADASIL Welcomes Two New Scientific Advisory Board Members
For additional details please view our press release. May 2018
CADASIL featured in Rare Neurological Disease 2018 Special Report
Dr. Karen Orjuela, worked together with cureCADASIL and Neurology Reviews to increase awareness of CADASIL [...]
2018 Global Genes RARE Patient Impact Grant to benefit CADASIL
cureCADASIL was awarded a 2018 Global Genes RARE Patient Impact Grant to support expansion of the [...]
CADASIL Connection December 2017 Webinar Recording
The following link will take you to the recorded December 2017 CADASIL Connection webinar. You [...]
cureCADASIL Auction Fundraiser Starts September 1, 2017
The cureCADASIL Association online auction will be held September 1-7, 2017. Bidding on items will help [...]
