cureCADASIL Advocated for CADASIL Patients at 2016 Rare Disease Week on Capitol Hill
cureCADASIL Trustee and tireless volunteer Janice Ragazzo attended Rare Disease Week on Capitol [...]
CADASIL Photo Frames Abound on Social Media for Rare Disease Day 2016
In honor of Rare Disease Day in February, many patients in the global CADASIL community [...]
Article in Neurology Reviews on launch of the CADASIL Family Registry
NEWS FROM NORD New CADASIL Family Registry is Launched! Click here to read the article [...]
How can I support cureCADASIL Association’s Mission?
Looking for ideas on how to help raise money for cureCADASIL Association toward our goals [...]
The Stigma of Rare Disease: How Do You Tell People About Your Condition?
by Janet Mills Posted on April 17, 2013 at: globalgenes.org/the-stigma-of-rare-disease-how-do-you-tell-people-about-your-condition Many rare diseases, like my own, [...]
2013 Rare Disease Day CADASIL Association
2013 Rare Disease Day summaries from CADASIL Association leadership From Anne McGuinness, President of CADASIL [...]
In Memory of William C. Penry 1941-1999
In Memory of William C. Penry 1941-1999 Father of Karla Written by Karla: My father [...]
2012 CADASIL Forum Conference, Utah
CADASIL Forum Five members of the Board of Trustees for CADASIL Association attended the CADASIL [...]
