Soaring Above the Stoarm 5k Run and 1 mile walk for CADASIL 2016
On May 7, the 2nd Annual Soaring Above the Storm 5K Run & 1 Mile [...]
cureCADASIL and the NJ Devils
On February 16, 2016, cureCADASIL was the Community Assist organization during the New [...]
Pennsylvania CADASIL patient raises funds and awareness
On February 7th, 2016 CADASIL patient Vanessa Prontnicki was honored at a “Dine [...]
cureCADASIL spotlighted by Rare Disease Report
Rare Disease Report is a website and weekly e-newsletter that offers an independent voice for [...]
cureCADASIL Trustees attend Alzheimer’s Disease-Related Dementias Summit
On March 29-30, 2016, Trustees Ronnie Bradbury and Anne McGuinness attended the Alzheimer’s [...]
cureCADASIL Advocated for CADASIL Patients at 2016 Rare Disease Week on Capitol Hill
cureCADASIL Trustee and tireless volunteer Janice Ragazzo attended Rare Disease Week on Capitol [...]
CADASIL Photo Frames Abound on Social Media for Rare Disease Day 2016
In honor of Rare Disease Day in February, many patients in the global CADASIL community [...]
Article in Neurology Reviews on launch of the CADASIL Family Registry
NEWS FROM NORD New CADASIL Family Registry is Launched! Click here to read the article [...]
How can I support cureCADASIL Association’s Mission?
Looking for ideas on how to help raise money for cureCADASIL Association toward our goals [...]
The Stigma of Rare Disease: How Do You Tell People About Your Condition?
by Janet Mills Posted on April 17, 2013 at: globalgenes.org/the-stigma-of-rare-disease-how-do-you-tell-people-about-your-condition Many rare diseases, like my own, [...]
2013 Rare Disease Day CADASIL Association
2013 Rare Disease Day summaries from CADASIL Association leadership From Anne McGuinness, President of CADASIL [...]
In Memory of William C. Penry 1941-1999
In Memory of William C. Penry 1941-1999 Father of Karla Written by Karla: My father [...]
2012 CADASIL Forum Conference, Utah
CADASIL Forum Five members of the Board of Trustees for CADASIL Association attended the CADASIL [...]
