cureCADASIL Welcomes Two New Scientific Advisory Board Members
For additional details please view our press release. May 2018
CADASIL featured in Rare Neurological Disease 2018 Special Report
Dr. Karen Orjuela, worked together with cureCADASIL and Neurology Reviews to increase awareness of CADASIL [...]
2018 Global Genes RARE Patient Impact Grant to benefit CADASIL
cureCADASIL was awarded a 2018 Global Genes RARE Patient Impact Grant to support expansion of the [...]
CADASIL Connection December 2017 Webinar Recording
The following link will take you to the recorded December 2017 CADASIL Connection webinar. You [...]
cureCADASIL Auction Fundraiser Starts September 1, 2017
The cureCADASIL Association online auction will be held September 1-7, 2017. Bidding on items will help [...]
CADASIL Connection August 2017 Webinar Recording Available
The following link will take you to the recorded August 2017 CADASIL Connection webinar. You [...]
CADASIL Research Highlighted by Rare Disease Report
Rare Disease Report shared the news of the latest published CADASIL research from the lab [...]
CADASIL Connection Webinar Speaker Series Announcement
Exciting progress is being made in understanding mechanisms of CADASIL mutations in disease expression, leading [...]
Rare on the Road 2017 Attended by cureCADASIL Trustee
Nancy Maurer, cureCADASIL President and Trustee, attended RARE on the Road in Kansas City on June 5, [...]
2017 Rare Disease Week in DC with RDLA
Feb.27 – March 2, 2017 Over 600 Rare Disease patients, caregivers, researchers and advocates met [...]
NC Rare Disease Coalition includes cureCADASIL Associate Trustee
cureCADASIL Associate Trustee Sandra Talbird joined the newly formed NC Rare Disease Coalition last Fall. [...]
Ragazzo Family Fundraiser
In May 2016, Tony and Janice Ragazzo helped organize a fundraiser at ESM Ferolie [...]
Soaring Above the Stoarm 5k Run and 1 mile walk for CADASIL 2016
On May 7, the 2nd Annual Soaring Above the Storm 5K Run & 1 Mile [...]
cureCADASIL and the NJ Devils
On February 16, 2016, cureCADASIL was the Community Assist organization during the New [...]
Pennsylvania CADASIL patient raises funds and awareness
On February 7th, 2016 CADASIL patient Vanessa Prontnicki was honored at a “Dine [...]
cureCADASIL spotlighted by Rare Disease Report
Rare Disease Report is a website and weekly e-newsletter that offers an independent voice for [...]
cureCADASIL Trustees attend Alzheimer’s Disease-Related Dementias Summit
On March 29-30, 2016, Trustees Ronnie Bradbury and Anne McGuinness attended the Alzheimer’s [...]
cureCADASIL Advocated for CADASIL Patients at 2016 Rare Disease Week on Capitol Hill
cureCADASIL Trustee and tireless volunteer Janice Ragazzo attended Rare Disease Week on Capitol [...]
CADASIL Photo Frames Abound on Social Media for Rare Disease Day 2016
In honor of Rare Disease Day in February, many patients in the global CADASIL community [...]
Article in Neurology Reviews on launch of the CADASIL Family Registry
NEWS FROM NORD New CADASIL Family Registry is Launched! Click here to read the article [...]
