Grant Awarded by Chan Zuckerberg Initiative (CZI)
cureCADASIL and a team of researchers have been awarded a $1M grant for [...]
Leukodystrophy Awareness Month
September was #LeukodystrophyAwarenessMonth! The United Leukodystrophy Foundation (ULF) rallied leukodystrophy nonprofits to help “shine [...]
Research News: The CADASIL Disease Modeling Group
The CDMG has continued to meet monthly and discuss research prospects and pathways. The goals [...]
2022 Million Dollar Bike Ride Update
This past June, Team CADASIL once again had a strong virtual and face-to-face presence [...]
CADASIL Pilot Research Grants Awarded for Over $120,000!
The 2021 Million Dollar Bike Ride (MDBR) held by the Penn Medicine Orphan [...]
2021 Million Dollar Bike Ride a Success for CADASIL Research
The 2021 MDBR remained virtual due to COVID-19 concerns, but that did not stop [...]
CADASIL Participating in Rare Disease COVID-19 NIH Study
The NIH has released a one month survey in order to enroll people [...]
2020 Million Dollar Bike Ride a Success for CADASIL Research
2020 was unlike anything we have experienced in the past. The COVID-19 virus changed [...]
Rare Genomics features CADASIL
A brief chat with Jane Gunther. Patient advocate associate for Rare Genomics, Lauren [...]
David and Eloise – CADASIL Journey Expressed Through Poetry
This patient story is adapted from the foreword of our new book of [...]
2019 Million Dollar Bike Ride a Success for CADASIL Research
On June 8, 2019 a team of rare disease warriors gathered as Team CADASIL [...]
A Patient’s Experience Participating in CADASIL Research
There is an ongoing research study at University of California San Francisco (Mission Bay) [...]
CADASIL at the 2019 Rare Disease Innovation and Partnering Summit
www.raredisease-summit.com cureCADASIL partnered with Geisinger Health System to present on the ClinGen Data [...]
cureCADASIL Hosted the US Roundtable of CADASIL clinical researchers
May 6, 2019 Philadelphia, PA cureCADASIL hosted the first US Roundtable of CADASIL [...]
cureCADASIL Invited to NeuroNEXT Foundation Outreach Meeting
May 4, 2019 Philadelphia, PA cureCADASIL was one of 15 non-profit organizations invited [...]
CADASIL advocacy at the 2019 Alzheimer’s Disease-Related Dementias Summit
https://meetings.ninds.nih.gov/Home/Agenda/21149 The Alzheimer’s Disease-Related Dementias (ADRD) Summit 2019 was organized by the NINDS [...]
CADASIL Patient Educates Physical Therapy Students
In November of 2018 Laura Lurshen gave an hour long presentation on CADASIL at Herkimer [...]
Million Dollar Bike Ride – Team CADASIL participating in 2019
The 6th Annual Million Dollar Bike Ride takes place on June 8, 2019. This year [...]
CADASIL Family Registry poster presented at 2018 NORD Summit
cureCADASIL, in collaboration with researchers at RTI Health Solutions (RTI-HS) and with Invitae, presented results [...]
CADASIL research at UCLA
Milagros Romay, Ph.D., Margaret Ramirez, Luisa Iruela-Arispe, M.Sc., Ph.D. During the Summer of 2018 cureCADASIL [...]
