The most important and widely attended meeting of rare disease patient advocacy organizations is the annual Global Genes meeting. This year’s meeting was held September 19-20, 2023, in San Diego, CA. Separate, parallel and simultaneous sessions were designed for patients, family members, care givers and investigators. Cure CADASIL was represented by Bertram Kasiske, Debra Robinson, and others.

Bert Kasiske (cureCADASIL President) and Debra Robinson (Treasurer)