Million Dollar Bike Ride Grants Announced
Thanks to all of the support from the CADASIL community and the Orphan [...]
Just Released: A Book on Atypical Dementias Featuring CADASIL
Jamie Talen, an acclaimed science writer who has focused on the brain, has [...]
cureCADASIL & Rare Disease Day 2023
Worldwide there are thought to be 300 million people suffering from a rare [...]
cureCADASIL Patient-Investigator Meeting
cureCADASIL is planning a half-day Patient-Investigator Meeting to be held at the United Leukodystrophy Foundation [...]
Recruiting Volunteers for Chan Zuckerberg Initiative-Funded CADASIL Study
Fill out the form below if you would like to participate in this [...]
Grant Awarded by Chan Zuckerberg Initiative (CZI)
cureCADASIL and a team of researchers have been awarded a $1M grant for [...]
Leukodystrophy Awareness Month
September was #LeukodystrophyAwarenessMonth! The United Leukodystrophy Foundation (ULF) rallied leukodystrophy nonprofits to help “shine [...]
Research News: The CADASIL Disease Modeling Group
The CDMG has continued to meet monthly and discuss research prospects and pathways. The goals [...]
2022 Million Dollar Bike Ride Update
This past June, Team CADASIL once again had a strong virtual and face-to-face presence [...]
CADASIL Pilot Research Grants Awarded for Over $120,000!
The 2021 Million Dollar Bike Ride (MDBR) held by the Penn Medicine Orphan [...]
2021 Million Dollar Bike Ride a Success for CADASIL Research
The 2021 MDBR remained virtual due to COVID-19 concerns, but that did not stop [...]
CADASIL Participating in Rare Disease COVID-19 NIH Study
The NIH has released a one month survey in order to enroll people [...]
2020 Million Dollar Bike Ride a Success for CADASIL Research
2020 was unlike anything we have experienced in the past. The COVID-19 virus changed [...]
Rare Genomics features CADASIL
A brief chat with Jane Gunther. Patient advocate associate for Rare Genomics, Lauren [...]
David and Eloise – CADASIL Journey Expressed Through Poetry
This patient story is adapted from the foreword of our new book of [...]
2019 Million Dollar Bike Ride a Success for CADASIL Research
On June 8, 2019 a team of rare disease warriors gathered as Team CADASIL [...]
A Patient’s Experience Participating in CADASIL Research
There is an ongoing research study at University of California San Francisco (Mission Bay) [...]
CADASIL at the 2019 Rare Disease Innovation and Partnering Summit
www.raredisease-summit.com cureCADASIL partnered with Geisinger Health System to present on the ClinGen Data [...]
cureCADASIL Hosted the US Roundtable of CADASIL clinical researchers
May 6, 2019 Philadelphia, PA cureCADASIL hosted the first US Roundtable of CADASIL [...]
cureCADASIL Invited to NeuroNEXT Foundation Outreach Meeting
May 4, 2019 Philadelphia, PA cureCADASIL was one of 15 non-profit organizations invited [...]
