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CADASIL Awareness Day – Thursday, November 16
November 16 is CADASIL Awareness Day! CADASIL is often misdiagnosed as Multiple Sclerosis, Alzheimer's Disease and other neurological disorders. Please share this image to get the word out! The video... -
Giving Tuesday, November 28
As you consider places to give on Giving Tuesday, November 28, please consider the impact of donating to cureCADASIL. Let's raise dollars to impact awareness. Donate Today! -
CADASIL and Netflix Fall of the House of Usher
What does CADASIL have in common with the Netflix series Fall of the House of Usher in reality? Answer: Very Little CADASIL rarely causes hallucinations. See www.cureCADASIL.org for more facts about CADASIL. -
UPDATE Melanie Neumann: Ironman for CADASIL
Melanie Neumann qualified for the Ironman World Championship in Kailua-Kona, Hawai`i on October 14, and she completed the race championing for cureCADASIL. She raised over $1700 for research. Melanie, we appreciate you and... -
New Brochure Presented at NORD Meeting
cureCADASIL was invited by the United Leukodystrophy Foundation (ULF) to share their table among the exhibits at the NORD meeting. Bertram Kasiske, President of cureCADASIL, joined with ULF and other... -
CZI Science in Society Meeting Attended
The CZI Science in Society Meeting was held on September 20-23, 2023 in Newport Beach, CA and was attended by Pedro de Lencastre, in person, and Jane Gunther, virtually, representing... -
Global Genes Conference Attended
The most important and widely attended meeting of rare disease patient advocacy organizations is the annual Global Genes meeting. This year’s meeting was held September 19-20, 2023, in San Diego,... -
Listen to the Latest CADASIL Consortium Webinar
A link is now available to view the webinar hosted by the CADASIL Consortium. It was held on October 17. This webinar provided a study summary and a Q&A panel with... -
2023 Patient Investigator Meeting Recordings
cureCADASIL held a half-day Patient-Investigator Meeting June 24 at the United Leukodystrophy Foundation (ULF) Scientific Symposium and Family Conference in Itasca, Illinois. Below is the Patient-Investigator Meeting Program as well as a link to hear the... -
Patient-Investigator Meeting Q&A with Jane Gunther, PhD DABT
What: Informal gathering with cureCADASIL where the community can ask your questions, voice concerns, and share your ideas about our June 24 Patient-Investigator meeting. Who: Anyone, in particular those planning or...