News/Events

What: Informal gathering with cureCADASIL where the community can ask your questions, voice concerns, and share your ideas about our June 24 Patient-Investigator meeting. Who: Anyone, in particular those planning or...

For three years 2020-2022, Jane Gunther successfully navigated the course for cureCADASIL. Now, with increasing responsibilities at work and home, she has stepped down as President and assumed new duties...

Watch for two webinars in May and September to be presented by investigators who have received funding from Team CADASIL and the Million Dollar Bike Ride: Modelling CADASIL with patient iPSC-based...

Thanks to all of the support from the CADASIL community and the Orphan Disease Center, the Million Dollar Bike Ride (MDBR) held in Philadelphia on June 11, 2022, raised an...

Jamie Talen, an acclaimed science writer who has focused on the brain, has released a book on atypical dementias. In it she features CADASIL and the lives of three CADASIL...

Worldwide there are thought to be 300 million people suffering from a rare disease. Every year cureCADASIL supports Rare Disease Day fundraising efforts. This year, cureCADASIL is also teaming up with...

cureCADASIL is planning a half-day Patient-Investigator Meeting to be held at the United Leukodystrophy Foundation (ULF) Scientific Symposium and Family Conference, June 23 - 24, Eaglewood Resort & Spa, Itasca, Illinois...

Who can participate?Anyone affected with CADASIL, or at risk of developing CADASIL. Family members and friends are welcome to participate as controls, as well as study partners.What does participation involve?A...

cureCADASIL and a team of researchers have been awarded a $1M grant for their collaboration titled “CADASIL-centered Modeling of Immunovascular Neurodegenerative Disease” as part of the Chan Zuckerberg Initiative’s Patient-Partnered...

In September, Sarah joined the cureCADASIL volunteer team and also became a participant in the CADASIL Consortium natural history study. Sarah shared with cureCADASIL what motivated her to participate in the study and...