Rare Genomics features CADASIL
A brief chat with Jane Gunther. Patient advocate associate for […]
David and Eloise – CADASIL Journey Expressed Through Poetry
This patient story is adapted from the foreword of our […]
2019 Million Dollar Bike Ride a Success for CADASIL Research
On June 8, 2019 a team of rare disease warriors […]
A Patient’s Experience Participating in CADASIL Research
There is an ongoing research study at University of California […]
CADASIL at the 2019 Rare Disease Innovation and Partnering Summit
www.raredisease-summit.com cureCADASIL partnered with Geisinger Health System to present on […]
CADASIL Patient Educates Physical Therapy Students
In November of 2018 Laura Lurshen gave an hour long […]
Million Dollar Bike Ride – Team CADASIL participating in 2019
The 6th Annual Million Dollar Bike Ride takes place on […]
Crystal and Albert’s Story
A Father and Husband Taken too Soon My husband had […]
Karla’s Story from Rio de Janeiro
Karla is a 42-year-old administrative manager of a luxury residential […]
CADASIL Family Registry poster presented at 2018 NORD Summit
cureCADASIL, in collaboration with researchers at RTI Health Solutions (RTI-HS) […]
CADASIL research at UCLA
During the Summer of 2018 cureCADASIL was able to support […]
A unique ICD-10 code for CADASIL: I67.850
The cureCADASIL Association announces that the National Center for Health […]
Cayla’s Story
IOWA FUNDRAISER SET FOR FAMILY WITH 3 CADASIL PATIENTS The […]
cureCADASIL Welcomes Two New Scientific Advisory Board Members
For additional details please view our press release. May 2018
CADASIL featured in Rare Neurological Disease 2018 Special Report
Dr. Karen Orjuela, worked together with cureCADASIL and Neurology Reviews […]
Michael’s Story
On June 6, 2015 I went out to breakfast with […]
2018 Global Genes RARE Patient Impact Grant to benefit CADASIL
cureCADASIL was awarded a 2018 Global Genes RARE Patient Impact Grant […]
CADASIL Connection December 2017 Webinar Recording
The following link will take you to the recorded December […]
cureCADASIL Auction Fundraiser Starts September 1, 2017
The cureCADASIL Association online auction will be held September […]
CADASIL Connection August 2017 Webinar Recording Available
The following link will take you to the recorded August […]
CADASIL Research Highlighted by Rare Disease Report
Rare Disease Report shared the news of the latest published […]
CADASIL Connection Webinar Speaker Series Announcement
Exciting progress is being made in understanding mechanisms of CADASIL mutations […]
Robert’s Story
This is an edited version of a post Robert […]
Rare on the Road 2017 Attended by cureCADASIL Trustee
Nancy Maurer, cureCADASIL President and Trustee, attended RARE on the […]
2017 Rare Disease Week in DC with RDLA
Feb.27 – March 2, 2017 Over 600 Rare Disease patients, […]
Tami’s Story
Tami Kansas, USA Age 44 at diagnosis Editor’s Note: Tami […]
NC Rare Disease Coalition includes cureCADASIL Associate Trustee
cureCADASIL Associate Trustee Sandra Talbird joined the newly formed NC […]
Ragazzo Family Fundraiser
In May 2016, Tony and Janice Ragazzo helped organize a […]
Soaring Above the Stoarm 5k Run and 1 mile walk for CADASIL 2016
On May 7, the 2nd Annual Soaring Above the Storm […]
cureCADASIL and the NJ Devils
On February 16, 2016, cureCADASIL was the Community Assist organization […]
Pennsylvania CADASIL patient raises funds and awareness
On February 7th, 2016 CADASIL patient Vanessa Prontnicki was honored […]
cureCADASIL spotlighted by Rare Disease Report
Rare Disease Report is a website and weekly e-newsletter that […]
cureCADASIL Trustees attend Alzheimer’s Disease-Related Dementias Summit
On March 29-30, 2016, Trustees Ronnie Bradbury and Anne McGuinness […]
cureCADASIL Advocated for CADASIL Patients at 2016 Rare Disease Week on Capitol Hill
cureCADASIL Trustee and tireless volunteer Janice Ragazzo attended Rare Disease […]
CADASIL Photo Frames Abound on Social Media for Rare Disease Day 2016
In honor of Rare Disease Day in February, many patients […]
Article in Neurology Reviews on launch of the CADASIL Family Registry
NEWS FROM NORD New CADASIL Family Registry is Launched! Click […]
How can I support cureCADASIL Association’s Mission?
Looking for ideas on how to help raise money for […]
The Stigma of Rare Disease: How Do You Tell People About Your Condition?
by Janet Mills Posted on April 17, 2013 at: globalgenes.org/the-stigma-of-rare-disease-how-do-you-tell-people-about-your-condition […]
Jax’s Journey to CADASIL Diagnosis
Jax Weston-super-Mare, England, UK Age 40 at diagnosis of CADASIL […]
Emma’s Experience with CADASIL
Emma Cairns, Queensland, Australia Age 37 at diagnosis of CADASIL […]
Special feature: Ask Dr. Joe
ASK DR. JOE Special Feature Q: Can you tell me […]
2013 Rare Disease Day CADASIL Association
2013 Rare Disease Day summaries from CADASIL Association leadership From […]
Special feature: Ask Dr. Joe
ASK DR. JOE Special feature Here are the questions submitted […]
Sonia’s Story
Sonia Vernon Prim Barrie, Ontario, Canada Age 28 at diagnosis […]
Courtney shares about her life with CADASIL
Courtney Colbert Saucier, Mississippi Age 21 at diagnosis of CADASIL […]
Special Feature: Getting to Know Dr. Joe Arboleda
Getting to Know Dr. Joe Arboleda Dr. Joseph F. Arboleda-Velasquez […]
Janet’s Story
Janet Mills Casper, Wyoming Age 49 at diagnosis of CADASIL […]
Karla’s Journey to a Diagnosis
Karla Mechanicsburg, Ohio Age 40 at diagnosis of CADASIL I […]
In Memory of William C. Penry 1941-1999
In Memory of William C. Penry 1941-1999 Father of Karla […]
2012 CADASIL Forum Conference, Utah
CADASIL Forum Five members of the Board of Trustees for […]