News/Events

cureCADASIL and a team of researchers have been awarded a $1M grant for their collaboration titled “CADASIL-centered Modeling of Immunovascular Neurodegenerative Disease” as part of the Chan Zuckerberg Initiative’s Patient-Partnered...

In September, Sarah McDaniels joined the cureCADASIL volunteer team and also became a participant in the CADASIL Consortium natural history study. Sarah shared with cureCADASIL what motivated her to participate in the study...

September was #LeukodystrophyAwarenessMonth! The United Leukodystrophy Foundation (ULF) rallied leukodystrophy nonprofits to help "shine a light" on leukodystrophy. cureCADASIL participated in the ULF events including the #SayItRight video campaign. By...

The CDMG has continued to meet monthly and discuss research prospects and pathways. The goals of the CDMG as originally envisioned include: Create a USA-based aggregate patient registry. Deploy omics...

This past June, Team CADASIL once again had a strong virtual and face-to-face presence in the MDBR. Team CADASIL raised $117,734 for research. Congratulations to everyone who participated! Special thanks...

In June 2015, Michael suffered a stroke. He had no risk factors, but he did have a history of migraines with aura, and his mother died at the age of...

I am writing this for my late husband. Mark's journey started in 2015. He retired in 2015 to enjoy his passion for fishing and hunting yet that never happened due...

The 2021 Million Dollar Bike Ride (MDBR) held by the Penn Medicine Orphan Disease Center raised funds for 28 different rare diseases. The program provides one-year grants to support research...

The 2021 MDBR remained virtual due to COVID-19 concerns, but that did not stop Team CADASIL from putting the pedal to the metal for CADASIL research.  Our team of virtual...

I was 13 years old when I had my first TIA.  I lost feeling in my left hand, left side of my tongue, sight and could not speak properly. I...