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Grant Awarded by Chan Zuckerberg Initiative (CZI)
cureCADASIL and a team of researchers have been awarded a $1M grant for their collaboration titled “CADASIL-centered Modeling of Immunovascular Neurodegenerative Disease” as part of the Chan Zuckerberg Initiative’s Patient-Partnered... -
Sarah – A CADASIL Consortium Participant
In September, Sarah joined the cureCADASIL volunteer team and also became a participant in the CADASIL Consortium natural history study. Sarah shared with cureCADASIL what motivated her to participate in the study and... -
Leukodystrophy Awareness Month
September was #LeukodystrophyAwarenessMonth! The United Leukodystrophy Foundation (ULF) rallied leukodystrophy nonprofits to help "shine a light" on leukodystrophy. cureCADASIL participated in the ULF events including the #SayItRight video campaign. By... -
Research News—The CADASIL Disease Modeling Group
The CDMG has continued to meet monthly and discuss research prospects and pathways. The goals of the CDMG as originally envisioned include: Create a USA-based aggregate patient registry. Deploy omics... -
2022 Million Dollar Bike Ride Update
This past June, Team CADASIL once again had a strong virtual and face-to-face presence in the MDBR. Team CADASIL raised $117,734 for research. Congratulations to everyone who participated! Special thanks... -
Michael Kennedy – A Research Fundraising Champion
In June 2015, Michael suffered a stroke. He had no risk factors, but he did have a history of migraines with aura, and his mother died at the age of... -
Mark’s Journey
I am writing this for my late husband. Mark's journey started in 2015. He retired in 2015 to enjoy his passion for fishing and hunting yet that never happened due... -
CADASIL Pilot Research Grants Awarded for Over $120,000!
The 2021 Million Dollar Bike Ride (MDBR) held by the Penn Medicine Orphan Disease Center raised funds for 28 different rare diseases. The program provides one-year grants to support research... -
2021 Million Dollar Bike Ride a Success for CADASIL Research
The 2021 MDBR remained virtual due to COVID-19 concerns, but that did not stop Team CADASIL from putting the pedal to the metal for CADASIL research. Our team of virtual... -
Desleyann – The Fight!
I was 13 years old when I had my first TIA. I lost feeling in my left hand, left side of my tongue, sight and could not speak properly. I...