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2018 Global Genes RARE Patient Impact Grant to benefit CADASIL

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cureCADASIL was awarded a 2018 Global Genes RARE Patient Impact Grant […]



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cureCADASIL Auction Fundraiser Starts September 1, 2017

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  The cureCADASIL Association online auction will be held September […]



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CADASIL Connection August 2017 Webinar Recording Available

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The following link will take you to the recorded August […]



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CADASIL Research Highlighted by Rare Disease Report

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Rare Disease Report shared the news of the latest published […]



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CADASIL Connection Webinar Speaker Series Announcement

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Exciting progress is being made in understanding mechanisms of CADASIL mutations […]



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Robert’s Story

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  This is an edited version of a post Robert […]



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Rare on the Road 2017 Attended by cureCADASIL Trustee

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Nancy Maurer, cureCADASIL President and Trustee, attended RARE on the […]



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2017 Rare Disease Week in DC with RDLA

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Feb.27 – March 2, 2017 Over 600 Rare Disease patients, […]



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Tami’s Story

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Tami Kansas, USA Age 44 at diagnosis Editor’s Note: Tami […]



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NC Rare Disease Coalition includes cureCADASIL Associate Trustee

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cureCADASIL Associate Trustee Sandra Talbird joined the newly formed NC […]



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Ragazzo Family Fundraiser

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In May 2016, Tony and Janice Ragazzo helped organize a […]



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Soaring Above the Stoarm 5k Run and 1 mile walk for CADASIL 2016

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On May 7, the 2nd Annual Soaring Above the Storm […]



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cureCADASIL and the NJ Devils

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On February 16, 2016, cureCADASIL was the Community Assist organization […]



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Pennsylvania CADASIL patient raises funds and awareness

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On February 7th, 2016 CADASIL patient Vanessa Prontnicki was honored […]



cureCADASIL spotlighted by Rare Disease Report

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Rare Disease Report is a website and weekly e-newsletter that […]



cureCADASIL Trustees attend Alzheimer’s Disease-Related Dementias Summit

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On March 29-30, 2016, Trustees Ronnie Bradbury and Anne McGuinness […]



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cureCADASIL Advocated for CADASIL Patients at 2016 Rare Disease Week on Capitol Hill

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cureCADASIL Trustee and tireless volunteer Janice Ragazzo attended Rare Disease […]



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CADASIL Photo Frames Abound on Social Media for Rare Disease Day 2016

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In honor of Rare Disease Day in February, many patients […]



Article in Neurology Reviews on launch of the CADASIL Family Registry

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Click here to read the article NEWS FROM NORD New […]



How can I support cureCADASIL Association’s Mission?

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Looking for ideas on how to help raise money for […]



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The Stigma of Rare Disease: How Do You Tell People About Your Condition?

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by Janet Mills Posted on April 17, 2013 at: globalgenes.org/the-stigma-of-rare-disease-how-do-you-tell-people-about-your-condition […]



Jax’s Journey to CADASIL Diagnosis

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Jax Weston-super-Mare, England, UK Age 40 at diagnosis of CADASIL […]



Emma’s Experience with CADASIL

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Emma Cairns, Queensland, Australia Age 37 at diagnosis of CADASIL […]



Special feature: Ask Dr. Joe

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ASK DR. JOE Special Feature Q: Can you tell me […]



2013 Rare Disease Day CADASIL Association

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2013 Rare Disease Day summaries from CADASIL Association leadership From […]



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Special feature: Ask Dr. Joe

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ASK DR. JOE Special feature Here are the questions submitted […]



Sonia’s Story

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Sonia Vernon Prim Barrie, Ontario, Canada Age 28 at diagnosis […]



Courtney shares about her life with CADASIL

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Courtney Colbert Saucier, Mississippi Age 21 at diagnosis of CADASIL […]



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Special Feature: Getting to Know Dr. Joe Arboleda

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Getting to Know Dr. Joe Arboleda Dr. Joseph F. Arboleda-Velasquez […]



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Janet’s Story

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Janet Mills Casper, Wyoming Age 49 at diagnosis of CADASIL […]



Karla’s Journey to a Diagnosis

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Karla  Mechanicsburg, Ohio Age 40 at diagnosis of CADASIL I […]



In Memory of William C. Penry 1941-1999

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In Memory of William C. Penry 1941-1999 Father of Karla […]



2012 CADASIL Forum Conference, Utah

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CADASIL Forum Five members of the Board of Trustees for […]