Thank you for sharing your CADASIL story, Sheila! 💙
Sheila is a member of our Community Advisory Group, established in collaboration with [...]
Look! cureCADASIL Has a New Look!
After months of hard work by our board and volunteers, we are excited [...]
Million Dollar Bike Ride 2024
It’s Time to Register for the Million Dollar Bike Ride 2024! Team CADASIL [...]
Patient Investigator Meeting 2024
Save the Date for the next Patient Investigator Meeting on June 29, 2024 [...]
CADASIL Awareness Day – Thursday, November 16
November 16 is CADASIL Awareness Day! CADASIL is often misdiagnosed as Multiple Sclerosis, [...]
Giving Tuesday, November 28
As you consider places to give on Giving Tuesday, November 28, please consider [...]
CADASIL and Netflix Fall of the House of Usher
What does CADASIL have in common with the Netflix series Fall of the [...]
UPDATE Melanie Neumann: Ironman for CADASIL
Melanie Neumann qualified for the Ironman World Championship in Kailua-Kona, Hawai`i on October 14, and she completed the [...]
New Brochure Presented at NORD Meeting
cureCADASIL was invited by the United Leukodystrophy Foundation (ULF) to share their table among [...]
CZI Science in Society Meeting Attended
The CZI Science in Society Meeting was held on September 20-23, 2023 in Newport [...]
Global Genes Conference Attended
The most important and widely attended meeting of rare disease patient advocacy organizations [...]
Listen to the Latest CADASIL Consortium Webinar
A link is now available to view the webinar hosted by the CADASIL Consortium. [...]
2023 Patient Investigator Meeting Recordings
cureCADASIL held a half-day Patient-Investigator Meeting June 24 at the United Leukodystrophy Foundation (ULF) Scientific Symposium and [...]
Patient-Investigator Meeting Q&A with Jane Gunther, PhD DABT
What: Informal gathering with cureCADASIL where the community can ask your questions, voice concerns, [...]
cureCADASIL Leadership Transition
For three years 2020-2022, Jane Gunther successfully navigated the course for cureCADASIL. Now, with increasing [...]
Upcoming CADASIL Connection Webinars
Watch for two webinars in May and September to be presented by investigators [...]
Million Dollar Bike Ride Grants Announced
Thanks to all of the support from the CADASIL community and the Orphan [...]
Just Released: A Book on Atypical Dementias Featuring CADASIL
Jamie Talen, an acclaimed science writer who has focused on the brain, has [...]
cureCADASIL & Rare Disease Day 2023
Worldwide there are thought to be 300 million people suffering from a rare [...]
cureCADASIL Patient-Investigator Meeting
cureCADASIL is planning a half-day Patient-Investigator Meeting to be held at the United Leukodystrophy Foundation [...]
