2018 Global Genes RARE Patient Impact Grant to benefit CADASIL

Blog Archives:

2018 Global Genes RARE Patient Impact Grant to benefit CADASIL

cureCADASIL was awarded a 2018 Global Genes RARE Patient Impact Grant to support expansion of the CADASIL Connection Webinar Series! CADASIL Connection is a webinar speaker series of researchers and clinicians from the CADASIL community invited to present their work in CADASIL. With the help of Global Genes, cureCADASIL will be able to educate researchers, clinicians, and patients on current research in CADASIL. Additionally, with the support of this grant cureCADASIL will be able to launch a new CADASIL Care webinar in late 2018 on topics of importance to patients and families. Look for communications from us in the near future to help decide potential webinar topics!

cureCADASIL was one of 12 rare disease organizations selected to receive a Patient Impact Grant in 2018. Read all about the 2018 Grant recipients on the Global Genes website. 

Global Genes initiated this grant program in 2016 to support rare disease organizations looking to fund projects that will make a difference in the lives of rare patients and caregivers in the US.  cureCADASIL is a Global Genes RARE Foundation Alliance partner and was previously awarded a Rare Patient impact grant in 2016 to increase awareness of the CADASIL Family Registry via local meet ups or “Registry Rallies” which took place across the United States.

CADASIL Connection August 2017 Webinar Recording Available

The following link will take you to the recorded August 2017 CADASIL Connection webinar. You will be asked to enter your name and email to access this recording. The sound quality is low for the first several minutes due to the volume of callers entering the webinar. The sound quality is excellent for the rest of the webinar.

Click here for August CADASIL Connection Webinar Recording
Li-Ru Zhao, Ph.D., M.D.

“Exploring a Therapeutic Approach for CADASIL: The Efficacy of Bone Marrow Stem Cell Factors in Brain Repair”

What’s next?

Please stay tuned for information on our October 2017 webinar

when CADASIL Connection will host speaker

Dr. Manfred Boehm, M.D.

Principal Investigator at NHLBI/NIH for the CADASIL Disease Discovery Study

CADASIL Connection Webinar Speaker Series Announcement

Exciting progress is being made in understanding mechanisms of CADASIL mutations in disease expression, leading to identification of potential disease-modifying therapeutics and disease biomarkers.
To highlight these advancements cureCADASIL Association is hosting
CADASIL Connection
an online series of three informative webinars that will be unique opportunities to educate and connect the audience of researchers, clinicians, and patients on current research and developments in CADASIL.
Our first webinar will be held via webconference:
Tuesday, August 1, 2017 at 7:00 – 8:30 p.m. (EST)
Registration available at: 

After registering, you will receive a confirmation email with information about joining the webinar.

After the webinar, a recording will be available at cureCADASIL.org.

 Irene Griswold-Prenner, Ph.D.
cureCADASIL SAB member and Co-founder & Chief Scientific Officer of Imago Pharmaceuticals, will kick-off the series with an overview of the known potential therapeutics for CADASIL that are in early proof-of-concept stage.


Li-Ru Zhao, Ph.D., M.D.
tenured Associate Professor, Department of Neurosurgery, State University of New York (SUNY) Upstate Medical University, recipient of the 2017 Bernard Sanberg Memorial Award from the American Society for Neural Therapy and Repair, will present:

Exploring a therapeutic approach for CADASIL:

                          The efficacy of bone marrow stem cell factors in brain repair