https://meetings.ninds.nih.gov/Home/Agenda/21149 The Alzheimer’s Disease-Related Dementias (ADRD) Summit 2019 was organized by the NINDS [...]
Nancy Maurer, cureCADASIL President and Trustee, attended RARE on the Road in Kansas City on June 5, [...]
Feb.27 – March 2, 2017 Over 600 Rare Disease patients, caregivers, researchers and advocates met [...]
cureCADASIL Associate Trustee Sandra Talbird joined the newly formed NC Rare Disease Coalition last Fall. [...]
In May 2016, Tony and Janice Ragazzo helped organize a fundraiser at ESM Ferolie [...]