Feb.27 – March 2, 2017 Over 600 Rare Disease patients, caregivers, researchers and advocates met [...]
cureCADASIL Associate Trustee Sandra Talbird joined the newly formed NC Rare Disease Coalition last Fall. [...]
cureCADASIL Trustee and tireless volunteer Janice Ragazzo attended Rare Disease Week on Capitol [...]
Looking for ideas on how to help raise money for cureCADASIL Association toward our goals [...]
2013 Rare Disease Day summaries from CADASIL Association leadership From Anne McGuinness, President of CADASIL [...]