CADASIL is a rare, inherited form of cerebrovascular disease that occurs when the thickening of small blood vessel walls in the brain’s white matter blocks the flow of blood to the brain.
CureCADASIL has gathered this information to offer all those touched by CADASIL support, resources, and opportunities to connect with others. We invite you to contact us with any questions.
Cautions
Agents for individuals with CADASIL to avoid, if possible. Always discuss with your physician:
- Cerebral angiography and anticoagulants may provoke cerebrovascular accidents
- Smoking and hypertension may increases the risk of stroke
- Thrombolytic therapy (intravenous thrombolysis) is contraindicated because of the presumed increased risk for cerebral hemorrhage
Anesthesia awareness
Be sure to share your CADASIL diagnosis with your surgical care team. It is important for CADASIL patients under analgesia to maintain hemodynamic stability leading to adequate cerebral perfusion. This is key to avoid an increase in the effects of the chronic arteriopathy people with CADASIL sustain.
Our information comes from the National Library of Medicine.
Connecting with Others
The views expressed by others on Facebook, Instagram, LinkedIn, X (formerly Twitter) and other sites do not necessarily reflect the views of cureCADASIL.
You can connect with our community via our social media pages:
Additionally, you can connect with the following Facebook groups. Please keep in mind that these groups are independent, and cureCADASIL does not operate or monitor them.
CADASIL Support on Facebook
Open, public group for anyone interested in learning more about CADASIL for any reason. People outside the group can see the members and posts.
CADASIL-ians on Facebook
Closed group for anyone touched by CADASIL: patients, families, friends, caregivers, medical professionals, students, and others. People outside the group can see the members in it but cannot see posts unless they are also a member.
CADASIL Patients United on Facebook: Contact Heather Chepko-Albertson for membership
Email: [email protected]
Private group for diagnosed CADASIL patients only. No one outside the group can see this page, your membership status, or your posts.
We Are CADASIL Connected on Facebook
This group is a place where people who love someone with CADASIL can come and connect with others who also love and care for someone with CADASIL. Our community is mostly spouses/partners. We ask that patients and family members who are at risk of having CADASIL join another private group such as CADASIL-ians.
CADASIL “At-Risk” Support Group on Facebook:
Closed group for anyone who has a biological family member with a CADASIL diagnosis but has not yet been tested personally.
NO diagnosed patients are allowed in this group so that members can talk freely about their options and opinions regarding testing…or not testing.
