Do you have questions about CADASIL, research studies, cureCADASIL, or other relevant topics? Please share with us and our speakers will do their best to address them during the meeting.
- $25 per adult
- $10 per child, under the age of 18
- Registrations covers entry to the event and eight (8) meals at the venue
Attendees are responsible for securing their hotel room(s) at the Eaglewood Resort and Spa (16 miles from O’Hare International Airport; ORD) and making their own travel arrangements. The meeting will be in person, but if you cannot attend in person there will also be an opportunity to participate online, virtually.
Families in need of financial assistance to attend this year’s meeting are encouraged to apply for a scholarship provided by the ULF. The ULF will waive the registration fees for two (2) adults and three (3) children, and cover the cost of one hotel room for the three (3) nights of the Family Conference.
Accommodations & Accessibility
Families or individuals seeking accommodations can book with the Eaglewood Resort & Spa with the event link below. If you need special accessibility accommodations or a room closer to the conference area, contact Sarah Mabeley, Group Reservations Agent at 630-694-5923.
About the ULF Scientific Symposium and Family Conference: An annual event where affected families can access the world’s top leukodystrophy physicians and researchers outside of the restrictions of insurance and the hospital setting. Held over two days, the Conference aims to provide the latest scientific information to keep families informed on advances in the field but also guide families on topics that will improve their overall quality of life while living with a leukodystrophy. The Conference is an invaluable experience geared toward the whole family: Affected individuals, parents and caregivers, spouses, siblings, extended family, friends, and anyone else in their support network.
The cureCADASIL Patient-Investigator Meeting is made possible in part by grant 2022-316712 from the Chan Zuckerberg Initiative DAF, an advised fund of the Silicon Valley Community Foundation.
Thank you to the United Leukodystrophy Foundation for sponsoring this event and supporting our efforts to connect with the CADASIL community.
cureCADASIL Contact Information
ULF Contact Information:
United Leukodystrophy Foundation 224 N. Second Street, Suite 2 DeKalb, IL 60115