Become a cureCADASIL volunteer
If you have skill set and time to volunteer for cureCADASIL please fill out the volunteer form below!
Get involved in advocacy
Reach out to your government leaders and ask them to support rare disease as they govern. Specifically you can mention CADASIL, but many of the initiatives they vote on focus on all rare diseases. Sending emails and letters is great, but a quick telephone call can be just as helpful. Often a legislative aide answers the phone and you give your name and state you want your representative to support rare diseases. IF there is a particular bill affecting rare disease, our organization will try to make you aware via our social media!
Use the links below to find and contact a US senator or representative and ask them to vote for legislation that helps rare disease research and funding:
