Raise Awareness


Become a cureCADASIL volunteer

If you have skill set and time to volunteer for cureCADASIL please contact us today!

We are looking for individuals for the following roles:

Silent auction committee – Do you have experience with a prior silent auction? We need your help. Join a small committee to organize and host an online auction for CADASIL research Fall 2017 (Planning starts Spring 2017)

Public Awareness committee – Share a CADASIL public service announcement on public TV and radio stations in your area. Or on social media or at your local hospital! We have detailed tips on how to achieve success in having our CADASIL PSA aired.  A great way to spread public awareness!

Get involved in political advocacy

Reach out to your government leaders and ask them to support rare disease as they govern.  Specifically you can mention CADASIL, but many of the initiatives they vote on focus on all rare diseases.  Sending emails and letters is great, but a quick telephone call can be just as helpful. Often a legislative aide answers the phone and you give your name and state you want your representative to support rare diseases.  IF there is a particular bill affecting rare disease, our organization will try to make you aware via our social media!

Use the links below to find and contact a US senator or representative and ask them to vote for legislation that helps rare disease research and funding:

Find my Senator

Find my Congress representative

 

Tweet for CADASIL

What do the symbols mean?
# means that you are adding that term to the search feature so everyone can pull up that phrase and see what has been posted.
@ means you are directing it to someone’s twitter wall

A great way to share is on social media, you could even add in your favorite celebrities to these posts! Use the @ symbol to reach out to friends on twitter, etc. It’s fun! (Once you have a twitter account, you can search for people and find out what their account name is.)

We are @CADASIL_Assn. You can also just go to our page at https://twitter.com/CADASIL_Assn and retweet (share) from there!

#CADASIL is the leading genetic cause of strokes – often beginning in young adults

Believe in the power of believing in yourself! #cureCADASIL

November is CADASIL Awareness Month – share and let the world know we want a cure! #cureCADASIL #RareDisease

30 million people in the United States are living with rare diseases. We need support for #RareDisease starting with #cureCADASIL