cureCADASIL is in the process of moving the The CADASIL Family Registry to a new home. The current registry is owned and maintained by Invitae, which filed for bankruptcy, and has now been purchased by LabCorp. Although the registry is still currently active, cureCADASIL feels we need more control of the data. Once the move is complete, we will have complete ownership, and we will be able to conduct an ongoing natural history study.
We anticipate that the transfer will be completed in the second quarter of 2025. Stay tuned for further announcements!