In honor of Rare Disease Day in February, many patients in the global CADASIL community shared their photos on social medial for awareness. Some of these photos were featured in cureCADASIL Fact Friday FaceBook posts online. This was a fun and effective way to connect the community and inform others about CADASIL. Thanks to everyone who participated and to Janet Mills for organizing!
This article was originally featured in a 2016 issue of EMBRACE newsletter published by cureCADASIL – thank you to everyone who contributed and to Janet Mills for assisting with pictures!