Five members of the Board of Trustees for CADASIL Association attended the CADASIL Forum Conference in Salt Lake City, Utah on September 12-14, 2012. This conference of medical professionals was organized and sponsored by the Russell family.
While the CADASIL Association Board meets via conference call once a month, this was our first opportunity to get together in person since the association was formed in the spring. Trustees Frederica “Freddie” Schilling, Christi Lushbaugh, Barbara Hunt, Janet Mills, and Anne McGuinness shared information regarding the CADASIL Association and held the first official membership meeting the day after the conference.
Many thanks to the Russell family for a successful conference where many CADASIL patients and families could meet up and gain more knowledge about this genetic condition.
This article was initially featured in the December 2012 issue of EMBRACE newsletter published by the CADASIL Association.