I or someone I love
has been diagnosed with CADASIL
A CADASIL diagnosis can feel overwhelming. We have gathered everything you need in one place — to help you understand the disease, find the right specialists, and connect with others who understand.
Find What You NeedStart Here
Understand CADASIL
Whether you have just received a diagnosis or have been living with CADASIL for years, these resources will help.
What is CADASIL?
Learn about CADASIL — what it is, how it affects the brain's small blood vessels, and what to expect.
Learn moreDiagnosis & Testing
Understand how CADASIL is diagnosed, including genetic testing, MRI imaging, and what results mean.
Learn moreFrequently Asked Questions
Answers to the most common questions patients and families ask after a CADASIL diagnosis.
Read FAQsFinding Care
Find a specialist and access resources
CADASIL is rare — not every neurologist has experience with it. These tools help you find care and information.
CADASIL Doctor Directory
Find neurologists and specialists who have experience diagnosing and treating CADASIL.
Search the directoryCADASIL Patient Handout PDF
A printable one-page handout — useful to share with your care team or family members.
Download PDFCalendar of Events
Stay up to date with upcoming events, webinars, and patient meetings.
View calendarWebinars & Speaker Series
Watch recorded webinars featuring researchers, clinicians, and patient advocates discussing CADASIL.
View webinarsCommunity & Connection
You don't have to face this alone
Connecting with others who understand CADASIL can make an enormous difference.
Support & Connect
Find support groups, online communities, and resources to connect with others living with CADASIL.
Find supportPatient Stories
Read first-hand accounts from people living with CADASIL — their journeys, challenges, and hope.
Read storiesNews & Events
Stay informed with the latest news, announcements, and events from the CADASIL community.
Read newsSee what we're learning from the registry
Over 130 people have joined the CADASIL Community Natural History Study so far. See real registry stats, demographics, symptom data, and more — and add your voice to the study.