About cureCADASIL
Our vision: a world without CADASIL.
Our Story
Originally founded in 2012 as the CADASIL Association and rebranded in 2014 as cureCADASIL, our not-for-profit organization represents a community united in a commitment to curing CADASIL and improving the quality of life for those affected by this genetic disease.
Our Vision
A world without CADASIL.
Our Mission
CureCADASIL is a patient-led organization committed to advancing CADASIL research through uniting patients, researchers, and clinicians to find a cure for CADASIL.
Our Core Values
We leverage our core values of collaboration, community, inclusion, integrity, and optimism to work on behalf of the patients and their families living with CADASIL.
- Collaboration. We highly value collaborations with researchers, clinicians, and other collaborators, recognizing the collective strength in advancing our shared mission.
- Community. We actively engage with the diverse CADASIL community, fostering connections among patients, family members, caregivers, researchers, clinicians, and all other stakeholders invested in discovering treatments and ultimately finding a cure for CADASIL. Together, we are dedicated to making a meaningful difference in the lives of those affected by this disease.
- Inclusion. We embrace diversity across all geographic regions and ethnic backgrounds affected by CADASIL. While acknowledging that socioeconomics can influence access to CADASIL diagnosis and care, we are committed to inclusivity, striving to overcome barriers and ensure all patients and families receive the support that they need.
- Integrity. Our commitment to ethical conduct is unwavering. We pledge honesty and transparency, upholding these values in all interactions within our community.
- Optimism. We embrace the power of hope and are dedicated to fostering optimism by relentlessly pursuing research & drug development to realize a world without CADASIL.
Our Board & Volunteers
Our Board of Trustees is composed of dedicated volunteers including patients, family members, and others impacted by CADASIL, who all bring a wealth of diverse knowledge and experience to our cause. We welcome everyone with open arms to join us as volunteers.
Learn more about the important work we've been supporting — from natural history studies to cutting-edge clinical trials.
Transparency & Financials
cureCADASIL is committed to full transparency. As a registered 501(c)(3) nonprofit (EIN: 45-5242623), we publish our annual Form 990 so donors can see exactly how funds are raised and used.
Find a copy of cureCADASIL's most recent Form 990 below.
Ready to Make a Difference?
Whether you donate, volunteer, or simply share our mission — every action brings us closer to a cure.
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