Leukodystrophy Awareness Month
September was #LeukodystrophyAwarenessMonth! The United Leukodystrophy Foundation (ULF) rallied leukodystrophy [...]
September was #LeukodystrophyAwarenessMonth! The United Leukodystrophy Foundation (ULF) rallied leukodystrophy [...]
The CDMG has continued to meet monthly and discuss research [...]
This past June, Team CADASIL once again had a strong [...]
The 2021 Million Dollar Bike Ride (MDBR) held by the [...]
The 2021 MDBR remained virtual due to COVID-19 concerns, but [...]
2020 was unlike anything we have experienced in the past. [...]
On February 16, 2016, cureCADASIL was the Community Assist organization [...]
On February 7th, 2016 CADASIL patient Vanessa Prontnicki was honored [...]
Rare Disease Report is a website and weekly e-newsletter that [...]
In honor of Rare Disease Day in February, many patients [...]