Stories by CADASIL individuals and families on their journey with this rare genetic disease
David and Eloise – CADASIL Journey Expressed Through Poetry
This patient story is adapted from the foreword of our [...]
Crystal and Albert’s Story
A Father and Husband Taken too Soon Albert and [...]
Karla’s Story from Rio de Janeiro
Karla is a 42-year-old administrative manager of a luxury residential [...]
Cayla’s Story
IOWA FUNDRAISER SET FOR FAMILY WITH 3 CADASIL PATIENTS The [...]
Michael’s Story
On June 6, 2015 I went out to breakfast with [...]
Robert’s Story
This is an edited version of a post Robert [...]
Tami’s Story
Tami Kansas, USA Age 44 at diagnosis Editor’s Note: Tami [...]
CADASIL Photo Frames Abound on Social Media for Rare Disease Day 2016
In honor of Rare Disease Day in February, many patients [...]
The Stigma of Rare Disease: How Do You Tell People About Your Condition?
by Janet Mills Posted on April 17, 2013 at: globalgenes.org/the-stigma-of-rare-disease-how-do-you-tell-people-about-your-condition [...]