Terms and Conditions


At www.curecadasil.org, one of our main priorities is the privacy of our visitors. This Privacy Policy document contains types of information that is collected and recorded by www.curecadasil.org and how we use it.

If you have additional questions or require more information about our Privacy Policy, do not hesitate to contact us through email at info@curecadasil.org.

Log Files

www.curecadasil.org follows a standard procedure of using log files. These files log visitors when they visit websites. All hosting companies do this and a part of hosting services’ analytics. The information collected by log files include internet protocol (IP) addresses, browser type, Internet Service Provider (ISP), date and time stamp, referring/exit pages, and possibly the number of clicks. These are not linked to any information that is personally identifiable. The purpose of the information is for analyzing trends, administering the site, tracking users’ movement on the website, and gathering demographic information.

Cookies and Web Beacons

Like any other website, www.curecadasil.org uses ‘cookies’. These cookies are used to store information including visitors’ preferences, and the pages on the website that the visitor accessed or visited. The information is used to optimize the users’ experience by customizing our web page content based on visitors’ browser type and/or other information.

DoubleClick DART Cookie

Google is one of a third-party vendor on our site. It also uses cookies, known as DART cookies, to serve ads to our site visitors based upon their visit to www.website.com and other sites on the internet. However, visitors may choose to decline the use of DART cookies by visiting the Google ad and content network Privacy Policy at the following URL – http://www.google.com/privacy_ads.html.

Our Advertising Partners

Some of advertisers on our site may use cookies and web beacons. Our advertising partners include:

  • Google

Each of our advertising partners has their own Privacy Policy for their website. For easier access, an updated and hyperlinked resource is maintained here:

Privacy Policies

You may consult this list to find the Privacy Policy for each of the advertising partners of www.curecadasil.org.

Third-party ad servers or ad networks uses technologies like cookies, JavaScript, or Web Beacons that are used in their respective advertisements and links that appear on www.curecadasil.org, which are sent directly to users’ browser. They automatically receive your IP address when this occurs. These technologies are used to measure the effectiveness of their advertising campaigns and/or to personalize the advertising content that you see on websites that you visit.

Note that www.curecadasil.org has no access to or control over these cookies that are used by third-party advertisers.

Third Part Privacy Policies

www.curecadasil.org’s Privacy Policy does not apply to other advertisers or websites. Thus, we are advising you to consult the respective Privacy Policies of these third-party ad servers for more detailed information. It may include their practices and instructions about how to opt-out of certain options. You may find a complete list of these Privacy Policies and their links here: Privacy Policy Links.

You can choose to disable cookies through your individual browser options. To know more detailed information about cookie management with specific web browsers, it can be found at the browsers’ respective websites. What Are Cookies?

Children’s Information

Another part of our priority is adding protection for children while using the internet. We encourage parents and guardians to observe, participate in, and/or monitor and guide their online activity.

www.curecadasil.org does not knowingly collect any Personal Identifiable Information from children under the age of 13. If you think that your child provided this kind of information on our website, we strongly encourage you to contact us immediately and we will do our best efforts to promptly remove such information from our records.

Online Privacy Policy Only

This privacy policy applies only to our online activities and is valid for visitors to our website with regards to the information that they shared and/or collect in www.curecadasil.org. This policy is not applicable to any information collected offline or via channels other than this website.

Medical Information

THE INFORMATION CONTAINED ON THIS WEBSITE AND SERVICES PROVIDED ARE NOT INTENDED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN, OR OTHER QUALIFIED HEALTH PROVIDER, PRIOR TO STARTING ANY NEW TREATMENT, OR WITH ANY QUESTIONS YOU MAY HAVE REGARDING A MEDICAL CONDITION. NOTHING CONTAINED IN THIS WEBSITE OR ITS SERVICES IS INTENDED TO BE FOR MEDICAL DIAGNOSIS OR TREATMENT OF ANY ILLNESS, CONDITION, DISORDER OR DISEASE.

WE DISCLAIM ANY RESPONSIBILITY FOR ANY HARM RESULTING FROM DOWNLOADING OR ACCESSING ANY INFORMATION OR MATERIAL.

NEWSLETTERS AND NEWS POSTS

Archived EMBRACE newsletters may be shared by electronic or printed means in its entirety anywhere our readers wish. NO changes may be made to this publication without the express written permission of the Board of Trustees of cureCADASIL Association.   EMBRACE news posts published to the cureCADASIL website may be shared by electronic or printed means in their entirety with no changes. 

All images are the property of the person submitting them, the property of cureCADASIL Association, or used by permission, or are free images from the Internet.

The information provided by cureCADASIL Association on their website and in their publications is intended to foster communication about CADASIL for both healthcare professionals and the public. It is not intended to take the place of professional medical advice.

The reader acknowledges that any collection and compilation of data or submissions for this publication may involve the likelihood of human and machine errors, omissions, delays, interruptions, and losses. This includes the inadvertent loss of data or damage to electronic media giving rise to loss or damage. Accordingly, the reader understands that the information contained in our publication is provided “as is.” The reader agrees that in no event will cureCADASIL Association be liable for the results of website or publication usage, or for direct, indirect, special, or consequential damages.

Consent

By using our website, you hereby consent to our Privacy Policy and agree to its Terms and Conditions.

State Disclosure Notices

A copy of our latest financial report may be obtained by writing to cureCADASIL, 10 Schalks Crossing Road, Suite 501A-133, Plainsboro, NJ 08536. cureCADASIL was originally founded as CADASIL Association in the state of New Jersey.  Below is information required to be posted by certain individual states. If you are a resident of one of these states, you may obtain financial information directly from the state agency:

FLORIDA – A COPY OF THE OFFICIAL REGISTRATION AND FINANCIAL INFORMATION MAY BE OBTAINED FROM THE DIVISION OF CONSUMER SERVICES BY CALLING TOLL-FREE, 1-800-435-7352 (800-HELP-FLA) WITHIN THE STATE OR VISITING www.800helpfla.com.  REGISTRATION DOES NOT IMPLY ENDORSEMENT, APPROVAL, OR RECOMMENDATION BY THE STATE. Florida Registration #CH44740

GEORGIA – A full and fair description of the programs of cureCADASIL and our financial statement summary is available upon request at the office indicated above.

MARYLAND –Copies of documents and information submitted by cureCADASIL are available for the cost of copies and postage from the Secretary of State, Statehouse, Annapolis, MD 21401.

MICHIGAN – cureCADASIL registration number in Michigan is MICS 53711.

NEW JERSEY – Information filed with the Attorney General concerning this charitable solicitation and the perventage of contributions received by the charity during the last reporting period that were dedicated to the  charitable purpose may be obtained from the Attorney General of the state of New Jersey by calling (973) 504-6215.  Registration with the Attorney General does not imply endorsement.

NEW YORK –New York residents may obtain a copy of cureCADASIL’s annual report by writing to the Office of the Attorney General, Department of Law, Charities Bureau, 120 Broadway, New York, NY 10271.

NORTH CAROLINA – FINANCIAL INFORMATION ABOUT THE cureCADASIL Association and a copy of its license are available from the state solicitation licensing branch at  1-888-830-4989. THE LICENSE IS NOT AN ENDORSEMENT BY THE STATE.

PENNSYLVANIA – The official registration and financial information of cureCADASIL Associaiton may be obtained from the Pennsylvania Department of State by calling toll-free, within Pennsylvania, 1-800-732-0999. Registration does not imply endorsement.

REGISTRATION WITH A STATE AGENCY DOES NOT CONSTITUTE OR IMPLY ENDORSEMENT, APPROVAL OR RECOMMENDATION BY THAT STATE.
REVISED:  06/10/17