Ragazzo Family Fundraiser

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Ragazzo Family Fundraiser

In May 2016, Tony and Janice Ragazzo helped organize a fundraiser at ESM Ferolie in New York, where Tony has worked for many years. The employees really pulled together and raised $550. The Ferolie Family generously matched what was raised, bringing the total donation for  cureCADASIL to $1100. We are so very thankful to the efforts of this company and family for supporting CADASIL research!  Great job!

This photo shows two employees who won the drawing during the fundraiser, with a member of the Ferolie family in the center.

Soaring Above the Stoarm 5k Run and 1 mile walk for CADASIL 2016

On May 7, the 2nd Annual Soaring Above the Storm 5K Run & 1 Mile Walk took place in Piscataway, NJ. Runners and walkers showed up regardless of the wet and cold weather! Thank you to all sponsors, participants and donors, in-person and virtual, who supported the event this year! Special thanks you to Linz Culcasi and Kathy Montgomery for your time and efforts organizing this fundraiser!

There was a CADASIL patient photo board created for the first 5K event in 2015.  It was displayed again for the 2016 event.  An additional photo board was displayed this year with new photo submissions. The photos show CADASIL patients from all around the world.

Member and patient Vanessa Prontnicki was the spokesperson for the 2016 event. She is shown to the left with her husband Jeff. Her uncle Bill Hall wrote on her Facebook post after the event: “Vanessa….

Runners and walkers who could not attend the event in New Jersey joined and participated in their local areas as “virtual” events.

Above left: Bruce and Henna participating from the Pacific Coast in California

Above right: Robin Russell Wilson participating in Salt Lake City, Utah

Pennsylvania CADASIL patient raises funds and awareness

On February 7th, 2016 CADASIL patient Vanessa Prontnicki was honored at a “Dine & Donate” fundraiser organized by parents from the school where she teaches. Over $1200 in proceeds raised at MaGerk’s Pub in Fort Washington, PA that night were donated to cureCADASIL. About 200 people came out for the event, and it was televised in the local area. MaGerk’s also donated 15% of their receipts.
You can see the video clip of Vanessa’s event and interview here:
Local news interview with Vanessa
A huge thank you to Vanessa and her supporters for making a difference in the fight against CADASIL!